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Charities
Here at Sanders Electrical Limited we are proud to support local charities in association with Brett Vale Golf Club
Help Alexia Walk
Alexia Rose Sinclair is 9 years old and hasn’t had an easy time since being born.
Alexia arrived at 28 weeks, unable to breath by herself and weighing 2lb 15oz, a whole 3 months early in June 2013. She spent a couple of months in special Care baby Unit and at the beginning of August 2013 we took her home to start life as a family. Sadly it was short lived as the first 6 days of being home, we had 3 ambulances back to hospital, because Alexia kept stopping breathing. The third time it happened, I thought she was dead, I thought that was it. Thankfully her daddy resuscitated her and brought her back but that day changed our lives forever. She turned into such a stiff baby, she struggled to have a bottle without stopping breathing. She struggled to be weaned. She never hit any milestones. And at 9 months old we received the devasting news we were expecting. Alexia had quadriplegic spastic / dystonic cerebral palsy!
We were told she would never walk, never talk and never do anything. After an MRI we were told her brain on her right side was so damaged she wouldn’t do much at all and that’s when at 9 months old she started conductive education, shortly followed by private physio. Sadly, the NHS barely offer her physio. From working hard continuously she’s proving all the doctors wrong.
In 2016 she started having Epilepsy, all due to her brain damage. 2 years ago we finally got it under control.
She’s had many operations in her little life. In 2016 she also had her first oper- ation to remove a lump on her eye. She also started being put to sleep to have Botox injections that same year. In 2017 she underwent a 9 hour operation to have a double hip reconstruction as well as muscle lengthening in her ham- strings. In 2018 we went to America for her to undergo the SDR operation. We knew the SDR was Alexia’s only chance of ever walking and living pain free.
Her whole life has been physio, appointments, ambulances and hospital stays. and it’s been a tough road. Having said that she now talks a lot, she walks beautifully being held or in her walker, she’s learning to use her hands and arms in new ways everyday.
Alexia is one of the happiest little girls ever and so full of life. She’s an absolute ray of sunshine who has taught and continues to teach us so much.
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